Sickle Cell

Sickle cell disease is a genetic disorder that affects red blood cells. It is the most common genetic disease in the world. In France, more than 400 babies are born each year with this disease, and there are more than 26,000 people living with sickle cell disease.

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Thalassemia

Beta-thalassemia is a genetic disease that also affects red blood cells. Less widespread than sickle cell disease, it concerns nearly 800 patients in France. It is a debilitating disease; Patients with severe beta-thalassemia are unable to produce enough hemoglobin and must be transfused every 3 to 4 weeks to survive.

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SOS GLOBI

The SOS GLOBI Federation "Together against sickle cell disease and thalassemia", gathers 18 patients' associations in France. SOS GLOBI possesses nearly 30 years of experience and commitment to patients and their families! OUR VISION: Allowing people with sickle cell disease or beta-thalassemia to live a normal life despite the burden of disease!

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